Welcome to the Guillain Barré Syndrome & CIDP Support Group of South East Queensland, Australia.
Not many people have heard of GBS (Guillain Barré Syndrome) or CIDP (Chronic Inflamatory Demylinating Polyneuropathy). They are both devastating conditions that usually have a sudden onset and can be very upsetting for not only the patient, but also their family & friends.
If you suffer with one of these conditions, or know someone with this condition, we hope this site is helpful and informative for you. However if you do have any questions, please dont hesitate to contact us anytime & we'll do our very best to help you.
GBS is short for "Guillain-Barré Syndrome" (pronounced Ghee-Yan-Barray), also called 'Acute Idiopathic Polyneuritis' & 'Landry's Ascending Paralysis'. It is an inflammatory disorder of the peripheral nerves, those outside the brain & spinal cord. the syndrome occurs sporadically. It can't be predicted, and can occur at any age and in either sex. It can vary greatly in severity from the mildest case, that may not even be brought to a doctors attention, to a devastating illness with almost complete paralysis and on life support. Because it is so rare, most of the public has never heard of the illness, or if they have, know little about it. Yet for those affected, the illness can be severely frightening and disabiling.
Guillain-Barré Syndrome is a very rare disorder, its frequency is about 1-2 cases in every 100,000 people per year. Men and women, young & old, are equally prone to contracting GBS or CIDP.p
Services available from the South East Qld Group include:
· Visits to patients by recovered persons
· Support via phone & email
· Support to family & friends of patient
· Information booklet
· Yearly newsletter
· Medical accessory information
· Occasional get togethers with other sufferers
· Recommendations to medical facilities
· Recommended health care
· Books and reading material
· Advice & Recommendations
· A friendly ear to understand